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| Hemophilia 2010 Congress | ||
| The Hemophilia 2010 World Congress will be held in Buenos Aires, Argentina, from Saturday, July 10 to Wednesday, July 14, 2010 | ||
| 56th Scientific and Standardization Committee (SSC) meeting of the International Society on Thrombosis and Haemostasis (ISTH) | ||
On May 22-25, 2010, 56th Scientific and Standardization Committee (SSC) meeting was held inCairo, Egypt . |
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International Congress RARE DISEASES AND ORPHAN DRUGS Istituto Superiore di Sanità Roma, Italy 22nd – 25th February 2010 |
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| Professor Flora Peyvandi presented the state of the art of the EN-RBD project and the progress in the development of the Italian registry on RBDs in collaboration with the Italian association of Haemophilia Centres (AICE) | ||
| EHA CONGRESS 2009 | ||
| On June 4-7, 2009, the 14TH Congress of the European Society of Hematology (EHA) was held in Berlin, Germany. Dr. Roberta Palla, from the University of Milan, presented the state of the art of the European Network of Rare Bleeding Disorders (EN-RBD) project |
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Rare Disease Day 2010February 28
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| Data and Information on Women's Health in the EU | ||
| Feb 2010 | ||
| This report provides an overview of women’s health issues across the EU and in EEA countries. It highlights gaps and special topics where research and more information are needed. | ||
| source: E.U Health and Consumers Directorate-General | ||
2009 |
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ISTH 2009 XXII Congress of The International Society on Thrombosis and Haemostasis July 11-16 2009 Boston U.S.A. |
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European Symposium on “Optimal Clinical Use of Blood Components” Professor Flora Peyvandi presented indications for treatment of rare bleeding disorders.
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15th International Meeting of Danubian League Against Thrombosis and Haemorrhagic Disorders Belgrade, May 14–16, 2009 |
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2 nd Annual EAHAD Congress, Munich Cultural Centre (Gasteig); Munich - Germany 26 th – 27 th February 2009
Professor Flora Peyvandi, on behalf of the European Network on Rare Bleeding Disorders (EN-RBD), presented the state of the art of the EN-RBD project, during the second congress of the European Association for Haemophilia and Allied Disorders (EAHAD). |
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| EPPOSI Workshop
March 2009 EPPOSI Workshop on Patients Registries for Rare DisordersNeed for data collection to increase knowledge on rare disorders and optimize disease management and care Wednesday 18 – Thursday 19 March 2009
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Rare Disease Day 2009February 28
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2008 |
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First meeting of the working group |
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| Milan - April 14-15, 2008 | ||
| Annual workshop of the European Network of rare Bleeding Disorders EN-RBD working group will be held in Copenhagen | ||
| Denmark on 16th December 2008 | ||
| www.rbdd.eu | ||
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